[Noisebridge-discuss] Hacking disability
romy at snowyla.com
Thu Feb 13 18:10:17 UTC 2014
The slides are very cool! I love it!
warning: this is long, but I intend to put this into the wiki
In addition to a talk, what about immersive hacking experiences? Maybe
"able-bodied" people would become more engaged if they had to walk around
the space on crutches, in a wheelchair and note what is and isn't
- Maybe I can hold a new event titled:* "5 minutes of engagement"
the audience versus a talk)*, similar to "Today We Learned" at
SudoRoom... it could be an extension of a talk that someone has already
- have participants walk around NoiseBridge in crutches...
- have people exploire Noisebridge in a wheelchair and, as you said,
see where the tight corners are
- brainstorm ways to inform people of when the elevator is needed.
Could we stick a bluetooth device on that thing so it's easily apparent
whether it's working or not? that way a wheelchair person/someone like me
won't waste time coming all the way out to NB and then finding we're
- I love how the slides address the "medical industrial complex" - all
for cheaper, better, faster ways to use customized devices! - as an "able
bodied" person I was never aware of this. Some doctors might feel
constricted & unable to help with medical device hacks for fear of getting
sued as well.
There are so many little things that stick out to me that are worth
mentioning in this email:
I was at a bus stop, and the bench was blocked off by dirt, so I couldn't
easily get there with my knee walker. I couldn't get to it from the street
since it was elevated from the street, and I couldn't get my scooter over
the sidewalk edge... so I sat next to the bus stop, not far away, but in
the area that was immediately accessible to me.
The bus just passed me by because I was two feet away from the bench. That
was really weird! I guess stuff like this happens to people in wheelchairs
lal the time.
Thanks for bringing up the topic of pain. I'm much better now, so I'm
leaving tourist status, but in the initial weeks after my operation on my
ankle, yes! I did feel a lot of pain. And it wouldn't be immediately
visible to people around me.
As an "able bodied person" I just never was aware of this. Distances
between bus stops were also much less intimidating.
I'm sure there are weird ways to simulate that =D hacking an S & M device?
Sidewalks + Streets
Well kept streets and sidewalks that wheelchair wheels can roll over are so
much more important now. I completely sympathize with folks in wheelchairs
facing bumpy, cracked, irregular sidewalks. It can mean struggling for 2
minutes over 10 feet or cruising over in 20 seconds... not to mention the
possibility of getting tipped over / tripping / getting stuck.
romy at snowyla.com
On Fri, Feb 7, 2014 at 1:05 PM, Liz Henry <lizhenry at gmail.com> wrote:
> It is very interesting even as a tourist to find how your perceptions
> of distance and space will change. Going across a room or something
> you wouldn't think twice about can suddenly be like climbing a
> mountain. I think the "tourist" awareness can help with long term
> awareness of things like keeping clear pathways and just knowing that
> other people can be in pain sometimes, factoring that into your social
> awareness. But it is also useful for thinking about DIY which lots of
> people with physical impairments or challenges have to do because
> standard things don't work and custom ones are not available or way
> expensive. There is a practical level but also a possible political
> level in which to think about this stuff....
> Romy you might like this 5 minute talk i did on hacking and disability
> - liz
> On Tue, Jan 21, 2014 at 2:18 PM, Romy Snowyla <romy at snowyla.com> wrote:
> > I love this discussion. I just got out of surgery and will be non weight
> > bearing for several weeks.
> > There's a world of difference between sympathy and empathy. Sometimes
> > sympathy however well intended is mixed with pity.
> > But I'm beginning to empathize and I find this a very positive
> > I'll most likely be on a knee scooter the next time I visit noisebridge.
> > elevator has a completely new meaning to me :)
> > Many medical devices are expensive because they need to be certified by
> > FDA and anything proprietary is inherently more expensive.
> > So any modifications by folks (especially those outside of a well funded
> > research university or start up) are very interesting to me.
> > You can't get more hacktastic than that!
> > I'm saving a lot of money even using garbage bags as opposed to the $20
> > cast covers they sell online.
> > I'm also impressed by the many hacker modifications for customization.
> > all pretty neat. Thank you for welcoming me into your world ... Even
> > I'm just a tourist ..,
> > Sent from my iPhone
> > On Jan 21, 2014, at 12:50 AM, Nana <nana at yak.net> wrote:
> > hi, Nana here:
> > broken hip 2 year ago, titanium implant. Wheelchair then 1.5 yr on
> > now 6 mo w/ cane. (plus emphysema) Lots of tiredness. Also oldness.
> > Unable to access NBridge unless elevator running. (frequently isn't).
> > We (Jake, Liz, Me} made some attempts to fix a found scooter w/o success.
> > I need a scooter at least part-time, & to figure out the logistics of
> > up some stairs. Someone recently showed me picture www.travelscoot.com &
> > want to price and try one out. Other interesting questions ie moped =
> > bicycle so legal on sidewalk, etc.
> > welcome to the club ;--)
> > On Mon, Jan 20, 2014 at 12:07 PM, bandit <bandit at cruzio.com> wrote:
> >> > I just double fractured my ankle and will be implanted with metal
> >> > like the terminator soon!
> >> ouch. good job! Do it *right*!
> >> >
> >> > I'll be testing knee scooters & hands free crutches as i go non weight
> >> > bearing ..
> >> Need to change your name to peg-leg...
> >> >
> >> > For lack if better semantics has anyone else hacked their legs? Made
> >> > their own crutches or wheelchairs at noisebridge ?
> >> >
> >> > I'm tentatively labeling this hacking disability :: sorry if I offend
> >> > anyone. I'm able bodied so I feel like a tourist although my myopia is
> >> > so
> >> > bad I'm legally blind without my coke bottle glasses so maybe I am
> >> > disabled visually at least :)
> >> Na.. welcome to the cripple club. Always like to see temporary members -
> >> keeps folks humble.
> >> I am interested in any experience with the "hand-free" crutch for a knee
> >> injury- seems would put a lot of pressure in the knee joint, unless the
> >> stress was on the thigh. That was the most pain-in-the-ass part of
> >> breaking my left knee, and no left hand. I lashed the crutch to my arm,
> >> but it was not an optimal solution.
> >> I's so blind I can't see my left hand, and I need new glasses - I see
> >> right hands. (hehe...)
> >> ... bandit
> >> >
> >> > Sent from my iPhone
> >> >
> >> --
> >> bandit at cruzio.com
> >> 505-228-8197
> >> bandit.name
> >> I am a systems engineer, specializing in:
> >> - Mission-Critical embedded systems
> >> - device drivers
> >> - control and data acquisition systems
> >> My stuff *works* - *all the time*.
> >> Member: INCOSE.org, PACA.org, IEEE.org, CaliforniaConsultants.org,
> >> quelab.net
> >> And to support my son: Proud members of the New Mexico .NET User Group.
> >> Please go to the community website at www.nmug.net.
> >> _______________________________________________
> >> Noisebridge-discuss mailing list
> >> Noisebridge-discuss at lists.noisebridge.net
> >> https://www.noisebridge.net/mailman/listinfo/noisebridge-discuss
> > _______________________________________________
> > Noisebridge-discuss mailing list
> > Noisebridge-discuss at lists.noisebridge.net
> > https://www.noisebridge.net/mailman/listinfo/noisebridge-discuss
> Liz Henry
> lizhenry at gmail.com
> "Electric ladies will you sleep or will you preach?" -- Janelle Monae
> "Without models, it's hard to work; without a context, difficult to
> evaluate; without peers, nearly impossible to speak." -- Joanna Russ
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