[Noisebridge-discuss] Fwd: Re: archiving a password protected website

Rigel Christian rigelc at gmail.com
Fri May 18 18:34:45 UTC 2012

not yet there arent, not to my knowledge anyways. There is some question
whether there is any benefit to doing so. even though the public tends to
widely believe that GENES=BOOKOFLIFE, the issue is decidedly more complex.
outside of a handful of serious diseases you would probably be presenting
with anyway, there is little there to help with diagnoses.

furthermore, there is an issue of data exclusivity. 23andme and other
corporate entities like it build databases in order to do with genetic data
what facebook does with social data.

IIRC, there was a presenter at the most recent CCC who was trying to build
a public library of genetic data, anonymized to the extent that is
possible. i dont have a link for you but im sure you can look it up.

a full genome sequencing at this point would cost you about $15k, i think?
others feel free to corret me if im wrong. but there are some new
technologies (ion torrent, and one other whose name im forgetting) who
could bring that number down substantially.

but then what are you going to DO with it? primary care physicians are not
set up to deal with interpretation of that kind of data, and even the best
guesses by medical geneticists are just that guesses. gene expression is
also SUBSTANTIALLY affected by environment.

lots more to say here, contact me directly if you're interested in learning
more, or if theres some specific point i didnt address in my
characteristically ranty way.

On May 18, 2012 12:32 AM, "Adam Engelhart" <adam at tellumo.net> wrote:
> Sir/Madam (please kindly delete whichever (if any) is inapplicable
> (and pardon my ignorance)):
> Are there any non-scammy places to have this done? I do not have the
> means but understood 23andMe was basically the gold standard for
> amateurs . . . a clue would be helpful in the extreme.
> Thanks!
> --AE
> On Fri, May 18, 2012 at 12:03 AM, Rigel Christian <rigelc at gmail.com>
> > 23andme does not sequence your genome
> >
> > 23andme gives you a set of SNPs, single nucleotide polymorphisms.
> >
> > look it up.
> >
> > it is, IMHO (as a former biology bench-researcher), kind of a scam.
> >
> > but it might give you some information that is useful.
> >
> >
> > On Sun, May 13, 2012 at 11:52 PM, Andy Isaacson <adi at hexapodia.org>
> >> On Sun, May 13, 2012 at 11:33:58PM -0700, Lee Sonko wrote:
> >>> I'm trying to make an archive of a website subscription I belong to,
> >>> 23andme.com account. I can't find a tool that will download this
> >>
> >> 23andme lets you download your raw genome data as a .zip.
> >>
> >> I don't think they provide a way to export the data they present on
> >> their website, though.
> >>
> >> There Really Should Be A Tool (tm) that operates as a HTTP proxy and
> >> simply writes out every HTTP resource that you retrieve to the
> >> filesystem.  I don't know of one, alas.  You can build one using
> >> mitmproxy or Perl's proxy module I suspect, but that sounds like
> >>
> >> -andy
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